So breathless today! Some days, it's really hard for me to talk without pausing upright in my wheelchair and while I am going out and about on a walk around the neighborhood because I drive my wheelchair with my mouth using a sip and puff.
As a quadriplegic with chronic respiratory failure it can be very taxing trying to breathe, while operating heavy machinery with my mouth lol. Not pict...
2022-11-05 03:24:24 +0000 UTC
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Sending all of you so much love
2022-11-04 04:33:44 +0000 UTC
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I had to get back out on this bike trail which runs behind our neighborhood 14 miles to Cherry Creek Reservoir before the snow tomorrow. It's tricky navigating when I control my chair with my mouth.… nevertheless I do it quite well. This is my favorite form of therapy by far. I imagine what it will be like when I get home to Washington state and can spend hours in nature in the rain on trails...
2022-11-03 05:08:34 +0000 UTC
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I imagine your hand between my thighs
My body wakes up,
I climb on top of you
Aggressive like an animal taking what is theirs
I know this is a moment you would like to share
So I'm not shy when she walks in the room.
In my mind these scenarios replay
And I wonder is this THE only way
Reminding me not to give up
// excerpt from disabled love
2022-11-03 05:04:01 +0000 UTC
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Just sayin…
2022-11-02 22:08:02 +0000 UTC
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2022-11-02 21:53:46 +0000 UTC
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It's very difficult getting me into the massage chair because I have absolutely no upper body strength whatsoever, all I can move is my head and neck. We have done this once before with success, but that was with my two caregivers and acupuncturist AND my dad, who is basically a respiratory therapist by now and helps calm me down when I freak out about my breathing. There is so much trauma atta...
2022-11-02 03:17:45 +0000 UTC
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How many people does it take to get an Elle into a massage chair…
2022-11-02 01:51:37 +0000 UTC
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IMMA let you guess
2022-11-01 04:50:24 +0000 UTC
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You better lock your phone,
And look at me when we’re alone
2022-11-01 03:40:01 +0000 UTC
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I want somebody to say to me
Come lay with me
You are safe with me
2022-11-01 03:36:00 +0000 UTC
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Do I think about the one that got away?
I know his name, I think about him every day
2022-11-01 03:30:38 +0000 UTC
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I didn't plan for it but I ended up looking kind of like a Viking queen. Not mad about it.
2022-11-01 03:12:25 +0000 UTC
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What do you think??
2022-10-31 20:35:29 +0000 UTC
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2022-10-31 20:32:18 +0000 UTC
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My haircut to drastically change my hairstyle was in late September… it's growing so fast! I'm going to continue to go in to have the sides shaved but I'm going to grow out the blonde and maybe become the red lady from Game of Thrones again ha ha ha. I know ALL you freaks
2022-10-31 20:27:48 +0000 UTC
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Feeling like a Viking queen… thank you Cc!
2022-10-31 20:21:59 +0000 UTC
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OK but my caregivers are the coolest ever!
2022-10-31 20:18:47 +0000 UTC
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We change the TRACH every month, but the collar gets change every Time I have a shower because it gets wet.
2022-10-31 20:16:37 +0000 UTC
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2022-10-31 20:12:12 +0000 UTC
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2022-10-31 20:10:02 +0000 UTC
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But if you were a big strong man, you could just pick me up;)
2022-10-31 20:06:57 +0000 UTC
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My muscle tone ain't bad
2022-10-31 19:39:32 +0000 UTC
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All black for today… happy Halloween
2022-10-31 19:34:26 +0000 UTC
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I'm really glad I have this commode chair. It allows me to do my bowel program, which obviously I will not be showing in videos! Self-explanatory. I know some people who are paralyzed who do not have for whatever reason, Insurance related etc. A chair like this. It makes a big difference because without it I wouldn't be able to do a morning routine sitting up and be able to take a shower.
2022-10-31 19:31:34 +0000 UTC
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I use rosewater after washing my face with an acure peonies cleanser.
Then this blue TANSY oil which I am FUCKING IN LOVE WITH. Smells amazing like I wish I could live inside this smell.
2022-10-31 19:25:35 +0000 UTC
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I really don't like goats, however… for some reason this lotion works wonders and keeps my skin very soft!
2022-10-31 19:17:32 +0000 UTC
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Exfoliating everything makes everything better
2022-10-31 19:12:25 +0000 UTC
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When you think that someone is loving you unconditionally, then they suddenly exit your life intentionally, it's possibly the greatest ego and trust death there can be. On the one hand, aren't we glad to realized that we don't need them to continue the journey… on the other hand… What the fuck.
I just want to say, I loved you the best I could. I'm sorry I got hurt. I'm sorry that I'm ...
2022-10-31 05:31:46 +0000 UTC
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Blue jeans
White shirt
Walked into the room
You know you made my eyes burn
2022-10-31 03:26:23 +0000 UTC
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